​​Welcome to Research with Older People


 

This page provides a list of all studies which are currently open to new participants. 

All research listed here has received full Ethical Review and Approval by the national Health Research Authority (HRA). Each study provides a link to the HRA National Study Record confirming its approval status. NB National Study Records are not available for research studies which started prior to 2014. 


 

Key to Use

The Blue box gives the short name of the study, so it is easy to remember. ​

The Orange box states whether the study is national (funded research), local (small-scale and internal to the Trust) or Educational (such as Student, PhD or MSc research).

The Green box states what kind of study the project is. It may be a Drug Trial, A Therapy study, A Trial which involves testing an educational or support package, or an Observational study where people are given questionnaires or are interviewed with no change to clinical care.

The Purple box states whether the study is Open to anyone to meets the criteria listed and who wishes to take part, or Restricted to certain groups of people (such as those in specific care services or certain schools or colleges). ​


 


 


 

Purpose of study:


 

Improving the experience of dementia and enhancing active life: a longitudinal perspective on living well with dementia


 

 

Who can be involved?

Clinical Diagnosis of Dementia with Lewy-Body, Frontotemporal or Parkinson’s-like Dementia OR

Clinical Diagnosis of any Dementia if you are under 65 or over 90 years of age.

Living in the Community
Able to complete questionnaires in English.

 

 

Lead Researcher and Organisation: Professor Linda Clare, University of Exeter


 

Contact if you are interested in learning more: 

researchinfo@nsft.nhs.uk (Norfolk and Suffolk only)

Study Website: http://www.idealproject.org.uk/takingpart/ideal2/


 

Further Details: National Study Record


 
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Purpose of study: Detecting Susceptibility Genes for Late-Onset Alzheimer’s disease


 

 

Who can be involved?

Late-Onset Alzheimer’s Disease: Experienced Onset of symptoms between 66-70
Early-Onset Alzheimer’s Disease: Experienced Onset of symptoms before the age of 65.
Willing to provide a blood or saliva sample.

 

 

Lead Researcher and Organisation: Professor Julie Williams, Cardiff University


 

Contact if you are interested in learning more:

researchinfo@nsft.nhs.uk (Norfolk and Suffolk only)


 

Study website: 

https://www.cardiff.ac.uk/mrc-centre-neuropsychiatric-genetics-genomics/research/themes/neurodegenerative-disorders/dementia/alzheimers-genetics


 


 


 

DLB genetics.png
 

Purpose of study: Detecting Susceptibility Genes for Dementia with Lewy Bodies


 

 

Who can be involved?

Meets criteria for having probable Dementia with Lewy Body.
Willingness to give blood or saliva sample.
Available study partner.
Able to provide informed consent to take part or have a Personal Consultee.

 

 

Lead Researcher and Organisation: Dr Rebecca Sims, Cardiff University


 

Contact if you are interested in learning more: researchinfo@nsft.nhs.uk​ (Norfolk and Suffolk only)


 


 

Further Details: National Study Record


 

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Purpose of study: The demenTia Research And Care Clinic

 

Who can be involved?

Alzheimer's Disease (AD), Frontotemporal Dementia (FTD), Vascular Dementia (VD) , Dementia with Lewy Bodies (DLB), Parkinson's Disease with Dementia (PDD), Mild Cognitive Impairment (MCI), Posterior Cortical Atrophy (PCA), Mixed dementia

•Available study partner


Lead Researcher and Organisation: Professor Michael Hornberger, University of East Anglia

 

Contact if you are interested in learning more: researchinfo@nsft.nhs.uk (Norfolk and Suffolk only)

 

Further Details: National Study Record


 

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Purpose of study: Understanding and managing everyday task performance in dementia

 

Who can be involved?

•Diagnosis of dementia

•Be able to participate (independently or with assistance) in at least two ADLs (e.g. bathing, dressing, grooming, toileting, transferring from bed to chair)

•Be living in the community with input from an unpaid caregiver totalling at least 7 hours per week.

•If on psychotropic medication, patients must have been on a stable dose for the past 60 days.
 

Lead Researcher and Organisation: Professor Eneida Mioshi, University of East Anglia

 

Contact if you are interested in learning more: researchinfo@nsft.nhs.uk (Norfolk and Suffolk only)

 

Further Details: National Study Record


 

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Purpose of study: A pragmatic, multi-centre, double-blind, placebo controlled randomised trial to assess the safety, clinical and cost effectiveness of mirtazapine or carbamazepine in patients with Alzheimer's Disease (AD) and agitated behaviours.

 

Who can be involved?

•Clinical diagnosis of probable or possible Alzheimer's Disease

•A diagnosis of co-existing agitated behaviours

•If receiving cholinesterase inhibitors or memantine, must be on a stable dose (defined as three months on current dose)

•Availability of a suitable informant (consenting identifiable family carer or paid carer)

 

Lead Researcher and Organisation: Sube Banerjee, University of Essex

 

Contact if you are interested in learning more: researchinfo@nsft.nhs.uk (Norfolk and Suffolk only)

Further Details: National Study Record